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2020 National Carer Survey launches

May 01 2020

The 2020 National Carer Survey has launched and 2.7 million unpaid carers across Australia are being asked to have their say.

The survey, conducted by Carers NSW in collaboration with researchers from five universities, and the National Network of Carer Associations, aims to increase general understanding of the caring role, carers’ lives, and build the evidence base for better support for carers.

The Carers NSW Carer Survey traditionally goes out every two years, but for the first time, this year it’s been expanded to be a national survey.

Carers NSW CEO, Elena Katrakis said the Carer Survey provides important research which enables carers to say what is and isn’t working in their caring role and in the systems they access.

“It is exciting to be able to lead the expansion of this survey nationally, to support carers more broadly across the country,” Ms Katrakis said.

This year’s study includes new questions that will provide more insight on other aspects of the caring role, including carers’ experiences with accessing disability, health, mental health, aged care and carer support services; carers’ financial situation and their participation in employment, community life and social relationships.

The survey also explores carers’ experiences and needs regarding respite care, the intensity of the caring role and how often they have the opportunity to take a break.

Results from the survey will be used to inform the work that all carers associations do with government, policy makers and service providers to advocate for and address the needs of carers.

Carers Queensland Chair, Jim Toohey said the study will provide crucial information about the challenges that carers face, and also further understanding of the needs of the 474,300 carers that live in Queensland.

“Carers have unique and changing needs. As these change, we also need to adjust our approach to better support them,” Mr. Toohey said.

The Carers NSW 2018 Carer Survey highlighted the significant personal consequences of providing many hours of care, including below average wellbeing, high levels of psychological stress and difficulty in accessing services.

In 2018, nearly one in three of the 1,830 carers who responded survey had been in their role for more than 20 years, and over half of respondents provided more than 60 hours of care per week.

Carers NSW receives funding from the NSW Department of Communities and Justice to conduct the biennial Carer Survey.

The survey is completely anonymous and is open to any carer over the age of 16.

Key findings from the survey will be published in a publicly available report and survey data will be used in a range of further publications.

The 2020 National Carer Survey is available online until 5 pm on Tuesday 30 June 2020 –

Complete the survey here 

Carers can also order paper copies of the survey by filling in an online form here