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Charlie is taking steps toward his future

Oct 10 2019

Eight-year-old Charlie from Morayfield loves school, music and is full of life.

He lives with his parents, Arabella and Mick, and his older brother Banjo, and is ready to achieve his goals of walking and communicating with support thanks to funding from the National Disability Insurance Scheme (NDIS).

The family are at the start of their NDIS journey, but already Charlie has taken his first steps. Charlie was born with Schizencephaly, the absence of the front left lobe of the brain, but this has not stopped him making progress towards achieving his goals.

“Charlie is ready to go and wants to move,” Arabella said.

“We trialled a wheelie walker and when the therapist put him in the harness he took off, and took his first three steps.

“At therapy he is also learning to commando crawl, and different ways to scoot around the house. He loves it. He laughs and has the best time.”

“His goals are to walk and communicate. I have always wanted him to walk; that was our primary goal, but now his communication is becoming more and more important.

“We are looking into orthotics, a walker, and communication tools to support his goals. Plus we are receiving support to help at home so we can focus on Charlie and also funding to maintain his equipment.”

Another passion of Charlie’s is swimming, and to support this passion and increase his independence, they have received funding for home modifications so Charlie can access the backyard and pool with ease.

The flexibility and freedom to choose support workers that fit in with their lives has also meant that Arabella can return to the workforce for the first time in 25 years.

In preparation for the NDIS, Arabella attended information sessions and meetings the year prior to ensure they felt ready when the NDIS rolled out in their area.

“We were excited about the NDIS and I think we were the first cab off the rank in this area. [Carers Queensland] called me to arrange a meeting and I filled out the booklet. I then met with Helen, Charlie’s Local Area Coordinator who was amazing – we love her.”

Charlie is now supported on his NDIS journey by Rachael, a Local Area Coordinator at Carers Queensland, NDIS Partner in the Community Program for the Moreton Bay region.

Carers Queensland can support you to find out more about the NDIS, to apply for funding and help you get started with the NDIS.

If you have a disability but are not eligible for the NDIS, Carers Queensland staff can also help you identify and link to options for support in your community.

To find out more about how the NDIS and Local Area Coordination program can work for you, visit Carers Queensland NDIS Local Area Coordination Partner in the Community Program for the Moreton Bay region, Level 5/10 The Corso, North Lakes 4509 or call (07) 3384 1600.

You can also contact Carers Queensland on 1300 999 636, or cq.enquiries@ndis.gov.au