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NDIS continence support lets Tom get on with teenage life

Jan 08 2020

Everyone deserves to live with dignity, and one of the most basic and often overlooked aspects of dignity is being able to manage your continence.

Fourteen-year-old Tom* has a spinal condition that affects his mobility and continence.

Since joining the National Disability Insurance Scheme (NDIS) he’s had a wheelchair upgrade, and joined a social gaming group which has opened up his world.

For his mother Karen, joining the NDIS has meant a lot less work to get Tom the continence support he needs.

“We’re now fully supported,” Karen says.

“I don’t have to run around trying to get bits of support from lots of different places, under the NDIS it’s all in the one spot.

“That makes it a lot easier for me, because I’m busy with kids and work, and it was nearly another full-time job to stay on top of all the paperwork and the organising.

“Under the old system we had a couple of hundred dollars a year, but that doesn’t go far when catheters are a dollar each and large nappies are a dollar each. It would get used up very quickly.

“Now Tom’s on the highest level for continence supplies, and everything we have to buy gets refunded straight away by our plan manager so we’re not out of pocket.”

Karen had support from an amazing Carers Queensland Local Area Coordinator (LAC) while she was getting used to the new system, learning how Tom’s funding could be used and how to work

with suppliers and service providers.

The LAC who supports Tom and Karen stays in touch to make sure Tom’s plan is on track, and to support them through plan reviews as Tom’s needs and goals change.

Karen says the simpler system and the right amount of funding to support Tom’s continence needs is benefiting the whole family and Tom is free to be like any other teenager.

If you have a disability but are not eligible for the NDIS, Carers Queensland staff can also help you identify and link to options for support in your community.

To find out more about how the NDIS and Local Area Coordination program can work for you, contact Carers Queensland on 1300 999 636, or cq.enquiries@ndis.gov.au

*Identifying details changed to protect privacy