Ryan's living life on his terms with funding from the NDIS

Published On: 14 September 2020Categories: News, Stories

Ryan Czernia is 31 years old, has completed a graphic design course and is now studying photography. Ryan was diagnosed at the age of three with Duchene muscular dystrophy and has achieved his goal of living independently with support from the National Disability Insurance Scheme (NDIS).

Moving from Ipswich in July this year, Ryan has shifted into an apartment in Brisbane’s inner city on the 16th floor. “He has always wanted to be close to his friends and close to uni,” Kerrie, Ryan’s mother said.

Ryan has been able to access this Specialist Disability Accommodation in Brisbane with assistance from the NDIS and Ryan’s mother reports how much happier he is.

“He is a lot happier. He was a little bit anxious with moving out but it has worked out better than what he thought it would. He is just really enjoying it. One of his friends comes over every Wednesday night for dinner, which is something he was never able to do. He has really grown up.”

With NDIS funded supports, Ryan has been able to engage his own support staff and take control of how and when he is supported. He now gets to decide when and where he goes, whether it’s to uni, the pub or out with his mates.

Kerrie said, “He is taking more control of his life and is much more independent. Being self-managed and being able to hire support workers who are a good fit has made Ryan’s life better.”

Kerrie has also made some changes in her own life. “It has also meant I have been able to get a job, because for 30 years I was his carer, so now that he is independent I have been able to get a job and feel a bit better about myself as well.  It has given me that freedom and has changed the whole family dynamic completely.” Kerrie said.

Ryan received assistance to implement NDIS funding from Carers Queensland’s NDIS Local Area Coordination Partner in the Community Program for the Ipswich region.

“I cannot speak highly enough about his Local Area Coordinators, Jimmy and Rachael, they are absolutely brilliant, they have been fantastic,” Kerrie said.

Carers Queensland can support you to find out more about the NDIS, to apply for funding and to help you get started with the NDIS.

If you have a disability but are not eligible for the NDIS, Carers Queensland can also help you identify and link to options for support in your community.

To find out more about how the NDIS and Local Area Coordination program can work for you, contact Carers Queensland on 1300 999 636, or cq.enquiries@ndis.gov.au.