Research is central to how we understand and interpret the issues and concerns of carers.
We actively support research projects as a way of creating better results for all caring families.
We are committed to furthering our understanding of their needs to make a difference in their lives.
Below you can find some of our current research projects. If you are interested in participating in any of them, you can contact the researchers directly.
Online Survey – Development of an app for carers of people with dementia
Griffith University is conducting a research project that aims to develop a smartphone app for carers of people with dementia to help manage functional disabilities of the family member they care for.
Invitation to participate in an online survey for carers of people with dementia
(Griffith University Ethics Ref No: 2017/906)
Family carers of older people with dementia are invited to help the research team from Griffith University, Australia (Professor Wendy Moyle, Doctor Cindy Jones, Doctor Pauline Calleja and Mr. Sarath Rathnayake) with their research project “Development of an mHealth application (smartphone app) for family carers of people with dementia to address health literacy needs related to functional disability of care recipients”. We invite you to participate in an online survey which forms part of a PhD study by Mr. Sarath Rathnayake.
What is the research about?
This research project aims to develop a smartphone app for carers of people with dementia to help manage functional disabilities (for example feeding, bathing, dressing, grooming, transportation and housekeeping etc) of their family members with dementia.
What is the aim of the online survey?
To help us to develop a smartphone app. We aim to 1) identify any difficulties you have in attending to the daily living activities of your family member with dementia and 2) your current use of smartphone apps in health information seeking.
Who can participate?
Nonpaid carers who are usually members of the immediate family or other relatives, friends, or acquaintances who provide care at home for a person with any type of dementia/Alzheimer’s disease and are an adult aged 18 years or older can participate.
What participation involves?
Completion of an online survey which will take approximately 20 minutes.
What are the benefits of participating?
Your contribution will help to identify needs related to support of family members who care for a person with dementia. This knowledge will be used to help develop a smartphone app for carers of people with dementia.
How can you participate?
To complete the survey, please click on the link below:
If you wish to complete the survey by telephone or via a printed survey, please contact Mr. Sarath Rathnayake, firstname.lastname@example.org; phone: +61405 374 522.
NOTE: To main your own privacy and the privacy of others, please do not post any personal information, questions or comments relating to the research. All posts will be deleted by the research team. For more information regarding this research project, please contact Professor Wendy Moyle, email@example.com, phone: +61 (07) 373 55526.
Survey - Examining the Relationship between Gratitude and Caregiver Burden
Murdoch University is conducting a study to establish whether feelings of gratitude influence the burden experienced by carers of people with severe mental illnesses.
Effective decision - making support
Researchers from QUT and La Trobe University are looking at ways to improve the process of supporting decision-making for people with cognitive disability (intellectual disability or acquired brain injury).
The project is looking for participants, specifically adults with a mild or moderate cognitive disability and those who regularly support them to make decisions. Supporters can be friends, family members or paid workers.
Contact Alison Holm on (07) 3138 4237 or firstname.lastname@example.org.
Supporting young people who experience mental health conditions
Researchers at the University of Sydney want to find out what strategies parents use to support young people who experience mental health problems, and which they find most helpful.
Contact Andrea Mizzi at the University of Sydney on Amiz2866@uni.sydney.edu.au.
Caring for carers of people with dementia
The program aims to provide support and information to isolated carers of older people with dementia living in regional and rural Australia.
Contact Atosha Clancy at Central Queensland University on email@example.com.
Supporting spouses of residents with dementia
The Dementia Centre for Research Collaboration at Queensland University of Technology (QUT) is carrying out a qualitative research study to explore the support needs of spouses of partners with dementia who have moved into residential care.
Contact Deborah Brooks at Queensland University of Technology on firstname.lastname@example.org.