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Research

Research is central to how we understand and interpret the issues and concerns of carers.

We actively support research projects as a way of creating better results for all caring families.

We are committed to furthering our understanding of their needs to make a difference in their lives.

Below you can find some of our current research projects. If you are interested in participating in any of them, you can contact the researchers directly.

“Cool for School”: Can a parent-group help to reduce anxiety in children with autism

Research suggests that children with autism may begin to experience the early signs of anxiety before they even start school.

The Autism Centre of Excellence at Griffith University is conducting a new study to determine if parent’s intervention is effective in reducing the anxiety experienced by children with autism.

Griffith University is currently seeking parents of children with a diagnosis of autism who will start school in 2021 in South East Queensland.

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Participating parents will take part in a trial of a six-session intervention that has been specifically designed to prevent or reduce anxiety in young children with autism.

Sessions will be run during school Terms (Term 1, 2 and 3) at Logan, Mount Gravatt and South Bank.

These will be led by an experienced qualified Clinical Psychologist (A/Prof Dawn Adams) and are free for parents.

The results of this study will provide an initial indication as to whether this intervention helps to reduce the level of anxiety experienced by children with autism both immediately and after they start school.

Research - Caring for a person with dementia

Researchers from Griffith University are looking for unpaid male carers over the age of 50, who live in South East Queensland to participate in a study to explore how men experience this role and how it impact their lives.

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You will be asked to participate in a 45 to 60 minute interview describing your experiences as
a caregiver through a set of several questions.

Participants will be given a $40 Coles/Myer gift card on completion of the interview.

ENACT: a trial of an early intervention for infants at risk of Autism Spectrum Disorder

Researchers at The University of Queensland have developed an early intervention approach for infants at risk of Autism Spectrum Disorder (ASD) – that is, for infants with a first-degree relative (parent or sibling) with ASD.

The early intervention program, ENACT, is delivered online through an e-course, “ENACT 101”, combined with online clinical consultations to assist parents to tailor the intervention to best meet their own individual needs and the needs of their baby.

ENACT incorporates early intervention approaches, targeting social reciprocity through everyday parent-child interactions, as well as strategies to support parental mental health and coping with parenting challenges such as infant sleep.

To participate in this study you need to be currently pregnant with a child who has a first-degree relative (that is, a biological mother, father, sister or brother) who has been diagnosed with an Autism Spectrum Disorder.

Melatonin for insomnia in Parkinson's disease

This study brings together a team of researchers from The University of Queensland, Wesley Hospital and St Andrew’s War Memorial Hospital. It aims to find out whether melatonin can assist people with Parkinson’s Disease to get better sleep.

The study involves two phases:

  • Phase 1 involves answering a questionnaire, education about treatment, and recording sleeping patterns in a sleep diary for two weeks.
  • Phase 2 involves testing medication effectiveness for 12 weeks. During this period, you will be given both melatonin or a placebo, in blocks of two weeks each, and in a random order. You will also need to keep a sleep diary and complete some questionnaires.

Emotional and behavioural functioning in adolescents with Autism Spectrum Disorder (ASD)

Researchers from Queensland University of Technology (QUT) are conducting a study to learn more about factors that may ultimately impact the emotional and behavioural functioning of adolescents diagnosed with ASD, from the perspective of the adolescents and their parent/caregivers.

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The research team is looking for adolescents diagnosed with ASD and one of their parents/caregivers.
Adolescents must be in grades 7 to 9, have one or more siblings, and an IQ of Low Average or above.
All participants will also need to have access to either a phone or a computer with internet.

Adolescents who have been diagnosed with intellectual disability unfortunately will not be able to participate due to participation requirements and the scope of this study. Additionally, adolescents who are unaware of their ASD diagnosis will not be able to participate.

Contact Biyanka Komandur at biyanka.komandur@hdr.qut.edu.au

Survey - Examining the Relationship between Gratitude and Caregiver Burden

Murdoch University is conducting a study to establish whether feelings of gratitude influence the burden experienced by carers of people with severe mental illnesses.

Supporting young people who experience mental health conditions

Researchers at the University of Sydney want to find out what strategies parents use to support young people who experience mental health problems, and which they find most helpful.

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Contact Andrea Mizzi at the University of Sydney on Amiz2866@uni.sydney.edu.au.

Caring for carers of people with dementia

The program aims to provide support and information to isolated carers of older people with dementia living in regional and rural Australia.

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Contact Atosha Clancy at Central Queensland University on carers@cqu.edu.au.

Supporting spouses of residents with dementia

The Dementia Centre for Research Collaboration at Queensland University of Technology (QUT) is testing a new telephone support program to help spouses and partners of people with dementia cope with any issues surrounding their move into residential care.

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Contact Deborah Brooks at Queensland University of Technology on deborah.brooks@qut.edu.au.